I want to point out the fact that (as of some time late yesterday) the Walk Across Michigan for CFS has breached $2,000 in money raised for ME/CFS research. I want to extend my deepest gratitude to thank who has donated so far. It’s really incredible to me that this campaign has come so far – and it’s only half-done. Instead of relying on a few major donors, a lot of money has come from a lot of different individuals donating smaller amounts. This has been fantastic; more people are talking about ME/CFS, and a lot of money has been raised so far.

If you have somehow participated in this campaign by expressing your support by financial or other means, I’d like to ask you to do something; please talk to someone about ME/CFS. Someone who maybe hasn’t heard of it, or doesn’t know much about it. I desperately hope that this campaign will make some dent in the awareness of this illness. I personally spent about three years experiencing the things that many other ME/CFS patients will describe. I was told over and over again that it was “just puberty,” “all in my head,” etc. Lacking knowledge, orthodoxy fills in the blanks. If I can do anything to prevent people from going through that experience, then I’ll be satisfied.

- Koerner

 


Comments

Sid Paradine
10/12/2012 8:02pm

Go Koerner! This is an amazing undertaking! Good for you and CFS!

Reply
Koerner
10/14/2012 10:51am

Thanks!

Reply
Amy
10/17/2012 2:23pm

Hey, tried to give you a ride in Mulliken today and went to the site. You are awesome! Good luck and God bless you! Also shared your link on facebook hopefully this will get more people aware of your cause and get the research this deserves.

Reply
Koerner
10/23/2012 5:20pm

Thanks for your generosity Amy! I really appreciate you actually taking the time to check out my site and helping to spread the cause. You could've just kept on driving, but you didn't, and I thank you for that!

Reply
Elsie Owings
10/22/2012 4:45pm

Again, kudos for all that you have accomplished!
Might I recommend some press coverage to improve the exposure and educational value of this effort? If the press isn't interested, perhaps they will be interested if a local CFS group speaks out? (Our group leader is a great advocate.) Sad to say, some amount of politics is always involved in these matters.
In any case, we are cheering and supporting you on this endeavor, including the days when you need to rest so you can continue.
In an earlier blog entry, you feared that your entries might begin with "today I walked from X to Y." Okay, so what's wrong with that? Today I walked from the car to the house! Following your travels is part of the excitement, and we would love to share it with you. However, I do realize that you may need to consider security or privacy concerns as well.
Best wishes to you always!
Elsie

Reply
Koerner
10/23/2012 5:24pm

Thanks Elsie. I was briefly featured tonight on WZZM13's news broadcast, and will be appearing on some other media programs soon. I assume you're talking about the CFS Solutions of West Michigan?
. . . By the way, I'll take your thoughts about posting into account!

Reply
Leah
10/24/2012 2:10pm

hi Koerner!
just found out about your walk of courage and wanted to cheer you on! it's a great thing you're doing for your fellow CF/ME patients. i truly admire you and know this is a difficult mission you've taken on.
congrats on making the news! you ARE making a difference, Kroener, with every step. (yup, this could easily turn into a song!). many thanks and blessing to you!
Leah

Reply
10/22/2013 10:27pm

This has been fantastic; more people are talking about ME/CFS, and a lot of money has been raised so far.

Reply
10/25/2013 6:50am

I'm new to all of this, but I will do my utmost to spread the word.

Reply
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